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CYSTIC FIBROSIS FOUNDATION (CFF)

The Cystic Fibrosis Foundation (CFF) was founded by Phyllis Kossoff, a Delta Phi Epsilon sister, in 1955, and Delta Phi Epsilon adopted the CFF as one of its three official philanthropies in 1958. The mission of the Foundation is to cure cystic fibrosis and to provide all individuals with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care. Delta Phi Epsilon chapters across the nation have raised over one million dollars to help make this mission possible. In appreciation of these fundraising efforts, the Cystic Fibrosis Foundation named a research fellowship in honor of Delta Phi Epsilon.

 

To raise awareness and funds for the cause, Zeta Beta hosts CFF week every fall and a larger event in the spring.

 

WHAT IS CYSTIC FIBROSIS?

 

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:

 

    ‒  clogs the lungs and leads to life-threatening lung infections; and

    ‒  obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

 

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

 

CF STATISTICS

 

     ‒  About 1,000 new cases of cystic fibrosis are diagnosed each year.

    ‒  More than 70% of patients are diagnosed by age two.

    ‒  More than 45% of the CF patient population is age 18 or older.

    ‒  The predicted median age of survival for a person with CF is in the mid-30s.

 

For more information, visit www.cff.org